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Parkinsons
Parkinsons Disease
Hello,
My name is Tony, I have Parkinsons. (PD)
I think since being diagnosed, I have found out what this Parkinsons thing is all about, but, what can I expect in the long term future, what is available to me with regard to ongoing information on treatments, drugs, care from the community and most of all I wanted to talk to someone in a like situation.
Searching on the net I found Parkinsons-UK and ES, both with Facebook pages so I was able to view what the general comments were and to find local groups at Novelda and Elche. Communication with them provided some information but there was always going to be the language barrier not being sufficiently fluent in Spanish myself.
Following the Parkinsons UK Facebook page, revealed help and advice that is available in the UK, one surprising aspect was that many Health Regions in the UK provide specialist nurses for advice outside of hospital neurological consultations. Also, that not only the patient needs help and advice but also carers find benefits from talking to other carers. Some groups in the UK have specialist guest speakers on all aspects of Parkinsons at their group meetings which can prove highly informative.
With all the above information I got to wondering if it would be possible to set up a Parkinsons Group in the Hondon region for all nationalities but mainly aimed at English speaking nationals although all others would be welcome. With this thought in mind, I am sending out an invitation to those of us with Parkinsons and their carers to ascertain if it would be a viable proposition to set up a Group locally. I have set up a temporary email address to which you can respond to, in complete confidentiality, if you would consider forming such a Group.
Regards, Tony ……………. [email protected]
